So today I posted my very first video on my fight with VS and the migraine - Here is the link http://yhttp://www.blogger.com/img/blank.gifoutu.be/7ou7GgcpMoo
I went to the Neuro Opth. today... he still thinks it's migraines. He wants me to take Elavil, but I am too scared. He did the normal steroid shots, this time getting my upper neck as well. I am pretty sore, but hope it helps. He still says I have occipital neuralgia as well....
I recently heard that Dr. at UCLA in California has signed on a Dr. from Germany to start the research on VS, and will hopefully lead to future studies. I am so happy about this and it really gives me a lot of hope!!
I have been going to church every Sunday to get my relationship back with God. It's tough when you have a condition that makes you feel so disconnected, but I will get there.
I am now working part time to help with my headaches and stress levels in hopes that I might have a breakthrough and my VS lessen or disappear. As of now it's been me running around to collect Dr.'s notes and medications prescribed from 2006 to see if there is a connection somehow with a medication I was put on them when my wonky subtle symptoms started.
Some days I feel sorry for myself... especially when I see other people my age with a child and they are having fun with no limits. I miss that. My light sensitivity is so severe I can't drive at night. When my son gets of age to start sports I won't be that mother on the sideline cheering.... unless, God willing, I get better.
I am still thinking about getting my thyroid taken out to see if it helps with anything... the medication for the graves disease is such a harsh medication and taking it for 10 + years is awful.
That's all for now!!!
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