Wednesday, September 25, 2013

New Symptoms

So after my last visit with the vestibular therapist and her saying my ears are close to functioning as normal and I can go about my life doing the exercises as needed, which means at least once a day or so. My curious brain wanted to see if watching traffic drive by would induce some kind of fuzzy feeling. Well... if you go looking for something, you will find it. Though it wasn't what I had expected. When I did this everything all of a sudden started looking robotic and fast. The cars would whip by and they would stutter in my vision. Not in frames, per se, but more like if you looked at a movie put in fast forward it would appear to jerk a little... that is what happened. It freaked me out and i got over it. A couple of weeks later on our way to Miami I noticed it on the interstate. Any car going in the opposite direction looked like it was jerking. It seems like the tires have been put in glue or something. Well lets say it pretty much ruined my whole Miami trip. When I got home I researched the crap out of it only finding topics on Frame vision. This scared me even more. I have since found out that there are a few people with visual snow who have it. I do not know the circumstances under which they acquired VS, but it seems to be very rare anyways. I had labeled myself that I would end up seeing in frames as some of these people report it happening very slowly and only noticing it in cars like me. I beat myself up for days and days and days neglecting my family because of the what if's... I found myself back at square one like when I first got Visual Snow. I am a Christian. I need to have faith. That is the only thing, aside from my husband and a couple of friends, has been able to pull me out of the funk and not label myself just yet. Every person is different and every symptom is different no matter what the disorder. I have bilateral hypo function and therefor my eyes and ears are tied together and if I am no longer dizzy than my brain is compensating, which means my eyes may be too. My migraines have started coming back and I know that can tie into everything as well. So for now I am giving it to God along with daily prayer that whatever is going on with me now will not progress down the road and will eventually go away. On another note - The study results for Visual snow will be released on October 29th 2013. There are a lot of people waiting to see what the study revealed is going on in our crazy brains. Praying that it will lead us to a cure so we can all see normally again and most importantly feel normal again :) God bless you all!