Wednesday, November 20, 2013

Lyme and Me

My brain.... oh my brain! I am given documentation that I have Lymes and yet my brain still tells me "NO, your answer CAN NOT be that easy... You see... you have strange visual symptoms that very few Lymies mention.... if you had Lyme why do you have those symptoms?" Oh yes, and there is also the obvious speculations that Igenex produces false positive (why anyone would do that, I dunno). Do I believe this... Not really, but I always like to give people the benefit of the doubt lol. I have seen a lot of stories with people who have tested negative through CDC Western Blots, like me, and then positive through Igenex and CDC WB, like me. I have also seen a lot of people who have tested negative through Igenex, but continued to treat and have gotten better. I am stuck in a situation.... because of my vision symptoms I am scared to treat with antibiotics because many VS'ers say their vision stuff started while taking ABX (Antibiotics). I am at the moment taking a supplement called Samento. I have noticed an increase in brain fog and have been very tired... but maybe that is the alcohol content in the product... not sure. I plan to soon as some other supplements into the mix and also get a book that recently came out by Dr. Horowitz..... If only I had a ton of money........

Friday, November 8, 2013

Igenex Lyme test

So I sent my blood to Igenex three weeks ago and patiently waited for the results. I was expecting anything of real value to come back, but boy was I wrong. I was sitting at home with my husband and son watching tv when I got the call. My test results were: IgG Negative - Bands: 41++ 58+ 39 IND (not able to determine) IgM Very Positive - Bands: 18++ 30+ 31++ 34+ 39+ 41++ My PCR test was also positive My Lyme Imuno Assay was negative with one test (not sure) but positive with the whole blood test. So what this means is.... I have Lymes Disease. I have Babs and Bulg (not sure how to spell these two) antibodies. I have spent 7 years living in a fog and dealing with these bizarre symptoms that have only been getting worse. I have been so disconnected from reality for so long that I've watched relatives die, pets die and just didn't know how to react all because of this disease. What hurts the most is that this started in 2006 and I was so out of my head that I barely spent time with my mom when she needed me the most in 2008/2009 and I didn't get to be with her before she died. I hope she understands why, now, and that one day I will get to see her again and give her a big hug and a kiss! I don't know if I should cry or have a party. If I cry I won't have to worry about my vision issues, if I have a party, sensory overload, so cry it is!!!!! I am going to start posting about my recovery on this site, along with some videos I will be posting on Youtube. Will update after Monday when I see my LLMD. xoxo God is great! Though I screamed and yelled at him many times, I asked him to show me the way and he did. Never, EVER, give up hope that YOU can find an answer to your problem, and that YOU CAN get better!