So I just got word that a friend of mine who had had the same symptoms as me found a medicine that worked for him. It was suggested by the Dr. in California who is researching the condition. He has long known of its potential to work, I guess it doesn't work for everyone though. I am thinking of bringing it up to my neuro opthalmologist (sp) to see what he thinks of me trying it. At this point sitting and waiting isn't curing me. It however is preventing me from taking another chemical that could make me worse.
I have concluded upon my own research that taking a beta blocker, which I believe is close to the same class as the above medication, is what caused this problem for me in the first place. The added anxiety in my already stressful life took a turn for the worse while on the medicine and then once off it really did me in. The Prozac some how must of helped in some areas, but I was still having the break through light sensitivity which told me something wasn't right. And once the medicine started to poop out for me it was slowly getting worse with symptoms. Then stopping it brought it out completely only to slowly get worse as the months pass on. I am going on 3 years since the first onset of strange symptoms (while on the prozac). Someone told me yesterday that when you have it so long your chances of getting better decrease, (said in a different way). I'd be ignorant to believe that. That would mean I had no hope and that is a lie. I've had hope since day one. I have hope through Jesus Christ that I WILL GET BETTER!!!
Friday, September 9, 2011
Wednesday, September 7, 2011
Mayo Clinic
So I first want to start this post and let you know discouraged I feel after seeing Dr's. Today my Dr. of 15 years told me he has never in his life seen a patient with my symptoms and they are rare. Not to mention they are no way related to my thyroid disorder. This is fine, the Thyroid relation part, but discouraging that he, being a Dr. has never heard of my condition... without a name. I am willing to get the surgery, which has been requested, to remove my thyroid, but now I am afraid of what will happen with the anesthesia and my unknown neurological condition. Could it make my symptoms worse? Could I not wake up? No one knows what my condition is or why I have it, how can they tell me I will be fine going under???
Anyways, I have decided I am going to try to get into the Mayo Clinic. I know I just need to go and see if they might find something that I haven't. Isn't this what the undiagnosed should do? I guess so.. but I have little hope with that too. Now it's the decision on which one to go to. Should it be the closest one... or is a distant one more up to date with medical equipment?
I have been praying every night for a miracle. I know God can heal... I just don't know why he hasn't done so with me. This whole ordeal has left me numb inside and it's so hard for me to believe in much of anything anymore, but I stand true to my faith and have to believe that something good will come out of this.
My eyes continue to get worse... afterimages have lessened some, but still there and still bad. Visual snow has gotten worse to where I can barely see in the dark anymore. Trails are much worse... can hardly function outside of the home with lights. Light sensitivity still present. Now I have been losing weight like crazy. My normal weight pre pregnancy was 160... that was with working out 5 times a day. I have cut out gluten to help with migraines, but I am now 130 lbs. This sound extreme to me since I am about 5 foot 7.
Before I go to the mayo I am going to see a gastrointerologist to check for common things. I am also seeing a gynocologist tomorrow since my period is non stop. Maybe it's hormone related since after having my sons the migraines started, along with the snow/static.
Any who... had a horrible migraine last night... Not sure of the trigger... maybe working on the computer at work. I don't know what I can do to stay home. I can not afford it, but it's the only time I can really function. I pray that this is figured out some how.
God bless everyone reading this who has similar symptoms. Some how... God willing, we will get through this.
Anyways, I have decided I am going to try to get into the Mayo Clinic. I know I just need to go and see if they might find something that I haven't. Isn't this what the undiagnosed should do? I guess so.. but I have little hope with that too. Now it's the decision on which one to go to. Should it be the closest one... or is a distant one more up to date with medical equipment?
I have been praying every night for a miracle. I know God can heal... I just don't know why he hasn't done so with me. This whole ordeal has left me numb inside and it's so hard for me to believe in much of anything anymore, but I stand true to my faith and have to believe that something good will come out of this.
My eyes continue to get worse... afterimages have lessened some, but still there and still bad. Visual snow has gotten worse to where I can barely see in the dark anymore. Trails are much worse... can hardly function outside of the home with lights. Light sensitivity still present. Now I have been losing weight like crazy. My normal weight pre pregnancy was 160... that was with working out 5 times a day. I have cut out gluten to help with migraines, but I am now 130 lbs. This sound extreme to me since I am about 5 foot 7.
Before I go to the mayo I am going to see a gastrointerologist to check for common things. I am also seeing a gynocologist tomorrow since my period is non stop. Maybe it's hormone related since after having my sons the migraines started, along with the snow/static.
Any who... had a horrible migraine last night... Not sure of the trigger... maybe working on the computer at work. I don't know what I can do to stay home. I can not afford it, but it's the only time I can really function. I pray that this is figured out some how.
God bless everyone reading this who has similar symptoms. Some how... God willing, we will get through this.
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